The 22nd meeting of the ERN Coordinators Group with representatives from DG SANTE took place at the Italian Ministry of Health in Rome on 21 May 2025. The event brought together coordinators and project managers from across the European Reference Networks to strengthen collaboration and drive improvements in patient care across Europe.ERN PaedCan was represented by Prof. Ruth Ladenstein, who contributed to the session on the Cross-Border Healthcare Directive and its implications for the ERNs.
Key topics on the agenda included:
Identification and exchange of best practices across ERNs.
Continuous monitoring and monitoring report.
Disease coverage and geographical accessibility of ERNs.
Sustainability and future directions of the ERNs initiative.
The meeting served as a platform to align strategies, share knowledge, and reinforce the commitment to providing high-quality, equitable healthcare to patients with rare and complex diseases across the EU.Note: