nnAll 24 European Reference Networks (ERNs) have launched a joint dedicated website and social media campaign to collect information to help Ukrainian patients with rare diseases for diagnosis, treatment, advice.nnThe 4 ERNs relevant to rare cancers are of course included: PaedCan, EURACAN, EuroBloodNet and GENTURIS.nnThe website is provided in 10 languages, including Ukrainian. It includes:n
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- Links to each of the 24 ERNs’ website
- Find a health care provider
- ERNs support for healthcare professionals
- Useful contacts and more information
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nWe encourage you to visit the website www.erncare4ua.com, share the link widely, and get involved by posting on Twitter using #ERNcare4Ua