| 2025 | | Healthcare | Differences in care delivery for children and adolescents with cancer in Europe – Results from the SIOPE OCEAN project | https://doi.org/10.1038/s41409-021-01374-y | | | |
| 2025 | | ESCP Guideline | European clinical practice recommendations for the diagnosis and treatment of paediatric pineal tumours | https://doi.org/10.1016/j.ejcped.2025.100217 | | | |
| 2025 | | ESCP Guideline | An overview of the European standard clinical practice recommendations for choroid plexus tumours | https://doi.org/10.1016/j.ejcped.2025.100226 | | | |
| 2025 | | ESCP Guideline | European standard clinical practice recommendations for newly diagnosed ependymoma of childhood and adolescence | https://doi.org/10.1016/j.ejcped.2025.100227 | | |
Ependymoma |
| 2025 | | ESCP Guideline | European standard clinical practice recommendations for children and adolescents with Rhabdomyosarcoma a joint EpSSG, CWS and ERN PaedCan project | https://doi.org/10.1016/j.ejcped.2025.100229 | | |
Rhabdomyosarcoma |
| 2024 | 8 | Healthcare | Spontaneous remission and loss of monosomy 7: a window of opportunity for young children with SAMD9L syndrome | https://doi.org/10.3324/haematol.2023.283591 | | University of Freiburg, University Hospital Motol, Ghent University Hospital, St. Anna Children’s Hospital, St. Anna Children’s Cancer Research Institute, Aghia Sophia Children’s Hospital, Hannover Medical School, Klinikum rechts der Isar, Technical University of Munich, University Medical Center Augsburg | |
| 2024 | 7 | Training and Education | Twinning to reduce research and innovation inequalities in paediatric solid tumours across Europe | https://doi.org/10.1016/j.ejcped.2024.100153 | | Vilnius University Hospital Santaros Klinikos, St. Anna Children’s Cancer Research Institute, University Medical Center Hamburg-Eppendorf
Rigshospitalet, Princess Máxima Center for Pediatric Oncology, Istituto Giannina Gaslini, St. Anna Children’s Hospital | |
| 2024 | 5 | ESCP Guideline | Overview of European standard clinical practice recommendations for multidiscplinary teams involved in the treatment of central nervous system tumours in children and adolescents – SIOPE Brain Tumour Group | https://doi.org/10.1016/j.ejcped.2024.100166 | | Princess Máxima Center, UZ Leuven, Azienda Ospedaliera di Padova, Charité Universitätsmedizin Berlin, University Medical Center Hamburg-Eppendorf | Atypical teratoid rhabdoid tumours (ATRT), Craniopharyngioma, Choroid plexus tumours, Ependymoma, Germ cell tumours (CNS), Glioma ( Low-Grade glioma (LGG), High-Grade glioma (HGG)) , Medulloblastoma, Rare CNS embryonal and sarcomatous tumours |
| 2024 | 4 | ESCP Guideline | European standard clinical practice recommendations for primary pediatric low-grade gliomas | https://doi.org/10.1016/j.ejcped.2024.100169 | | Aghia Sophia Children’s Hospital, Copenhagen University Hospital, Rigshospitalet
Charité Universitätsmedizin Berlin, Princess Máxima Center for Pediatric Oncology | Glioma , Low-Grade |
| 2024 | | ESCP Guideline | Overview of current European practice for the management of patients with intracranial germ cell tumours | https://doi.org/10.1016/j.ejcped.2024.100146 | | | Germ Cell Tumours (CNS, intracranial) |
| 2024 | 9 |
Registries | Paediatric very rare tumours registration and management in European countries with low health expenditure average rates |
https://doi.org/10.1007/s12094-024-03674-3 | | Children’s Hospital Zagreb Croatia, University Hospital of Padua, Fondazione IRCCS Istituto Nazionale Tumori, Institut Curie, Marciniak Hospital, Hospital S. João, Medical University of Gdansk, Dortmund Municipal Hospital, Children’s Hospital Eberhard-Karls-Universität | |
| 2024 | 9 | CPMS | A virtual consultation system for very rare tumors in children and adolescents – an initiative of the European Cooperative Study Group in Rare Tumors in Children (EXPeRT) | https://doi.org/10.1016/j.ejcped.2023.100137 | | Dortmund Municipal Hospital, Fondazione IRCCS Istituto Nazionale Tumori, Institut Curie, University Hospital of Padua, Marciniak Hospital, Medical University of Gdansk, Children’s Hospital Zagreb Croatia, Hospital S. João, Children’s Hospital Eberhard-Karls-Universität | |
| 2024 | | Healthcare | Do national cancer control plans address care and research for children, adolescents, and young adults? A review of status, priorities, and recommendations across 41 European countries | https://doi.org/10.1016/j.lanepe.2024.101155 | | | |
| 2024 | | ESCP Guideline | Medulloblastoma therapy: Consensus treatment recommendations from SIOP-Europe and the European Reference Network |
https://doi.org/10.1016/j.ejcped.2024.100205 | | | Medulloblastoma |
| 2024 | | ESCP Guideline | European standard clinical practice recommendations for paediatric high-grade gliomas |
https://doi.org/10.1016/j.ejcped.2024.100210 | | | Glioma, high grade |
| 2023 | 4 | Healthcare | Rare embryonal and sarcomatous central nervous system tumours:
State-of-the art and future directions | https://doi.org/10.1016/j.ejmg.2022.104660 | | Rigshospitalet Copenhagen Denmark, Charité Universitätsmedizin Berlin, Princess Máxima Center for Pediatric Oncology, Aarhus University Hospital Denmark | MN1-altered Astroblastoma and other rare Embryonal and Sarcomatous Tumours |
| 2023 | 9 | ESCP Guideline | European standard clinical practice – Key issues for the medical care of individuals with familial leukemia | https://doi.org/10.1016/j.ejmg.2023.104727 | | Hannover Medical School, University of Freiburg, Hôpital Universitaire des Enfants Reine Fabiola, Aarhus University Hospital, Comenius University Medical School and University Children’s Hospital, University of Padova, Ghent University Hospital, Princess Máxima Center for Pediatric Oncology, Università di Milano-Bicocca Monza Italy | Familial Leukemia |
| 2023 | 9+ CCI | Patient centeredness | Solutions for optimal care and research for children and adolescents with extremely rare cancers developed within the Joint Action for Rare Cancers (JARC) | https://doi.org/10.1016/j.ejcped.2023.100130 | | Clinical Hospital Centre Rijeka Croatia, Medical University of Gdansk Poland, IRCCS Istituto Nazionale Tumori Milan Italy, Institut Gustave Roussy, CCI Europe Austria, University of Padova, Medical University Wroclaw Poland, Dortmund Municipal Hospital Gerrmany, Institut Curie, University Children’s Hospital Tuebingen | |
| 2023 | 8 | CPMS | A virtual consultation system for very rare tumors in children and adolescents – an initiative of the European Cooperative Study Group in Rare Tumors in Children (EXPeRT) | https://doi.org/10.1016/j.ejcped.2023.100137 | | Dortmund Municipal Hospital Gerrmany, IRCCS Istituto Nazionale Tumori Milan Italy, Institut Curie, University Children’s Hospital Tuebingen, University of Padova, Medical University Wroclaw Poland, Medical University of Gdansk Poland, Clinical Hospital Centre Rijeka Croatia | |
| 2023 | 2 but only from Italy | Healthcare | Magnetic resonance imaging characteristics of pediatric pilocytic astrocytoma | https://doi.org/10.1007/s10072-023-06893-8 | |
Fondazione IRCCS Istituto Neurologico Carlo Besta Milan, Fondazione IRCCS Policlinico San Matteo Pavia | |
| 2023 | 1 | Healthcare | Cognitive and Behavioral Outcome of Pediatric Low-Grade Central Nervous System Tumors Treated Only with Surgery: A Single Center Experience | https://doi.org/10.3390/diagnostics13091568 | | Fondazione IRCCS Istituto Neurologico Carlo Besta Milan | |
| 2023 | 6 | ESCP Guideline | European standard clinical practice recommendations for children and adolescents with primary and recurrent osteosarcoma | https://doi.org/10.1016/j.ejcped.2023.100029 | |
Princess Máxima Center for Pediatric Oncology, Karolinska Institutet, Oslo University Hospital, Gustave Roussy, Klinikum Stuttgart Olgahospital, St. Anna Children’s Hospital | Osteosarcoma |
| 2022 | 6 | ESCP Guideline | NUT Carcinoma in Children and Adolescents: The Expert European Standard Clinical Practice Harmonized Recommendations | https://doi.org/10.1097/mph.0000000000002568 | | Clinical Hospital Center Rijeka University of Rijeka Croatia, Fondazione IRCCS Istituto Nazionale dei Tumori Milano, Dortmund Municipal Hospital, Padova University Hospital, Children’s Hospital Eberhard-Karls-Universität Tübingen, Institut Curie | NUT Carcinoma |
| 2022 | 2 | Healthcare | A Limited Course of Eculizumab in a Child with the Atypical Hemolytic Uremic Syndrome and Pre-B Acute Lymphoblastic Leukemia on Maintenance Therapy: Case Report and Literature Review | https://doi.org/10.3390/jcm11102779 | |
University Hospital Centre Zagreb Croatia, Semmelweis University | |
| 2021 | | Healthcare | Hematopoietic stem cell transplantation in children and adolescents with GATA2-related myelodysplastic syndrome | https://doi.org/10.1038/s41409-021-01374-y | | | |
| 2021 | EXPeRT Special Issue | Healthcare | Facing the challenges of very rare tumors of pediatric age: The European Cooperative Study Group for Pediatric Rare Tumors (EXPeRT) background, goals, and achievements | https://doi.org/10.1002/pbc.28993 | | | |
| 2021 | EXPeRT Special Issue | Registries | The European Paediatric Rare Tumours Network – European Registry (PARTNER) project for very rare tumors in children | https://doi.org/10.1002/pbc.29072 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Pleuropulmonary blastoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.29045 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Pancreatoblastoma in children: EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.29112 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Consensus recommendations from the EXPeRT/PARTNER groups for the diagnosis and therapy of sex cord stromal tumors in children and adolescents | https://doi.org/10.1002/pbc.29017 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Thymoma and thymic carcinoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.29042 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Nasopharyngeal carcinoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.29018 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Adrenocortical tumours in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.29025 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Salivary gland carcinoma in children and adolescents: The EXPeRT/PARTNER diagnosis and treatment recommendations | https://doi.org/10.1002/pbc.29058 | | | |
| 2021 | EXPeRT Special Issue | ESCP Guideline | Cutaneous melanoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations | https://doi.org/10.1002/pbc.28992 | | | |
| 2021 | | Healthcare | Review of guidelines for the identification and clinical care of patients with genetic predisposition for hematological malignancies | https://doi.org/10.1007/s10689-021-00263-z | | | |
| 2021 | | Registries | The impact of incomplete registration on survival rate of children with very rare tumors | https://doi.org/10.1038/s41598-021-93670-2 | | | |
| 2021 | | ESCP Guideline | Adjuvant therapy of histopathological risk factors of retinoblastoma in Europe: A survey by the European Retinoblastoma Group (EURbG) | https://doi.org/10.1002/pbc.28963 | | | |
| 2018 | | ESCP Guideline | Bone sarcomas: ESMO-PaedCan-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up | https://www.annalsofoncology.org/article/S0923-7534(19)31712-0/fulltext | | Annals of Oncology | |
