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High-Level Meeting on a European Research and Innovation Ecosystem for Rare Diseases
The High-Level Meeting (HLM)on a European research and Innovation ecosystem for rare diseases will take place on December 9-11, 2025 in Brussels.This three-day event will gather key stakeholders, including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers. The goal is to identify concrete actions and incentives to enhance innovation across the rare… Read more
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6th International Symposium for Childhood Adolescent and Young Adult Hodgkin Lymphoma (ISCAYAHL)
The 6th International Symposium for Childhood Adolescent and Young Adult Hodgkin Lymphoma (ISCAYAHL) will take place in Berlin, Germany, October 15-18,2025. The symposium target audience: Scientists and clinicians involved in the research and treatment of Hodgkin lymphoma in children, adolescents, and young adults. The Focus areas: Survivorship outcomes, global clinical trial portfolios, novel therapeutic biomarkers, advances in… Read more
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11th Biannual EWOG-MDS/SAA Symposium
The 11th Biannual EWOG-MDS/SAA Symposium will take place in September 18-20 2025 in Berlin, Germany. We invite you to participate in person or virtual (presentations available on demand for 3 months) The abstract deadline is June 15, 2025. Under the motto “On the verge of malignancy: Cytopenia and Beyound” International experts will present and discuss novel… Read more
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22nd meeting of the ERNs Coordinators Group
The 22nd meeting of the ERN Coordinators Group with representatives from DG SANTE took place at the Italian Ministry of Health in Rome on 21 May 2025. The event brought together coordinators and project managers from across the European Reference Networks to strengthen collaboration and drive improvements in patient care across Europe.ERN PaedCan was represented… Read more
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ERN PaedCan General Assembly
The ERN PaedCan General Assembly took place on 15 May, during the SIOPE Annual Meeting in Budapest, Hungary. During the session, the coordination team shared updates on topics such as: Slides were sent to all main and secondary representatives of the network and are also available on the ERN Collaborative Platform. Read more
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Building a Research and Innovation Ecosystem for Rare Diseases
With the aim to stablish a concrete ecosystem for rare diseases, the Brains4Brain Foundation organised a preparatory event to present the project to selected policymakers – other MEPs and representatives from the European Commission and the Members States. The hearing is designed to inform future political and policy activities in the rare disease space and… Read more