The Clinical Patient Management System (CPMS)
Healthcare providers who are members of ERNs are connected through a dedicated IT platform and, using a variety of telemedicine tools, offer access to expertise and knowledge of multidisciplinary teams, enabling patients to receive the best advice for treatment and diagnosis. Consultation requests to ERNs are handled via the CPMS 2.0 (Clinical Patient Management System) launched at the end of February 2025.
Provided by the European Commission DG SANTÉ, CPMS represents a secure web-based application to support the networks in bringing specialized expert advice to all patients in Europe in need of diagnosis and treatment of rare or low prevalence complex diseases or conditions. It allows virtual consultation through medical teams across national borders, ensuring that the needed expertise can travel to the patient, instead of the other way around
Setup
If you are a medical doctor in need of consultation, you need to create an EU login account and request access to CPMS 2.0. Here is a short Setup Guide for EU login and a Short Guide how to request access for CPMS 2.0.
Patient Consent
To discuss a patient in CPMS, a consent form needs to be signed by the patient or the patient’s legal guardian. Please find templates for the consent form in all official languages of the European Union hereafter. Please note that these templates need to be completed by filling in the patient’s hospital name and Data Protection Office (DPO) contact information. More information on how to use the templated can be found here.
consent form templates:
In case you have questions on how to register and access the system, please contact the ERN PaedCan CPMS Helpdesk.
Expert Groups in CPMS 2.0
Case discussions for certain disease entities can be directed to predefined Groups. They meet on a regular basis to discuss consultation requests coming in through ERN PaedCan.
Since there are only limited slots available for each discussion round, please contact the appropriate group via the email addresses provided for pre-selection. To see how to enroll a patient and invite an expert group to the panel, please see the Enroll Patient Guide.
Expert Groups in CPMS 2.0
BRAIN TUMOUR GROUP
The Brain Tumour Expert Group meets every week on Tuesday at 11.00 CET and has two slots of 20 minutes available to discuss CPMS cases.
Please use this Guide and follow the workflow described within. For any uploaded DICOM imaging, please note the date of acquisition and number of contained images in Episode Description – Imaging findings.
Ewing Sarcoma Group
The Ewing Expert Groups meets every Friday at 12.30 CET and has two slots of 20 minutes available to discuss CPMS cases
Please fill out the case sheet and send it to itb@uk-essen.de in order to make sure all necessary information is available to the expert group. Please follow this check list to see what information is needed for a successful panel discussion.
OSTEOSARCOMA GROUP
Consultation request should be directed to COSS@klinikum-stuttgart.de for evaluation before it can be addressed in CPMS.
RARE EMBRYONAL/SARCOMATOUS BRAIN TUMOURS (CNS-REST)
Paed Oncology (coordinators)
Molecular biology
Neuropathology
Neuropathology (pineal tumours) on request
Neuroradiology
Neurosurgery
Radiotherapy
Genetics (Contact GENTURIS) on request
Inclusion may be requested by mail to the coordinating physician (Katja von Hoff: katvon@rm.dk, Sarita Depani, Johannes Gojo).
The ERN / SIOP-E CNS REST Tumour Board will be held every other Wednesday from 14.00-15.00 CET/CEST (may be adapted). All information on the patient needs to be uploaded on CPMS 2.0 until Monday 14.00 CET/CEST in a week where a meeting is held.
Please follow the group’s workflow in this SOP.
A PowerPoint template for presentation of the patient in the Tumour Board can be found here.
Please also complete the clinical information form and upload all the required information to the patient.
RARE TUMOURS EXPERT
SCARLET EXPERT BOARD
Expert board for discussions on early and late effects research in Lithuanian paediatric oncology